Archive for May 7th, 2007
Michael and I have quite a good system going, I think. He goes cycling on alternate days (usually Mon, Wed & Fri), and I go to the gym to swim, also on those days. And we’re eating much less junk than we used to. Just from cutting out bread, I actually looked reasonable in my costume today. It’s amazing how it bloats one up. (Well, that may have been due to the fact that I ate at least half a loaf at a time, lol) Anyway, I’ve substituted it with oats. I have it with raisins and a dusting of ground cinnamon, and it’s way better than the bread anyway. So, all in all, we’re trying to adopt a healthier lifestyle, and hats off to us – it’s going pretty well
I’m starting to feel right at home at the gym. Didn’t think I would like it. Just goes to show.
I wish the medical aids in SA would approve Tysabri for the treatment of MS. I’ve heard such good things about it. Currently, it would cost one in the region of R18 000 per month, if you were to pay it out of your own pocket. So obviously not an option. I hope someone is working on this. Maybe I should find out and join a group of lobbying protestors, brandishing placards, flashing their boobs (or whatever else they have to flash) and demanding that SA med-aids get their act together. So many of us with MS are on a serious time-limit, with encroaching disability that could be avoided. I know R18 000 is a whopping amount of money, but where do you draw the line? When is it too expensive to give someone their life back? A large amount of nerve-damage that takes place during a relapse is irreversible, thus the disabilty becomes accumulating following each successive relapse. Tysabri stabilises the condition and reduces relapse rate by a massive 90%, nearly three times as much as any other MS-medication on the market. But for many people, time is running out. Relapsing-remitting MS, more often than than not, changes over time to the non-remitting form. People with this form of the disease aren’t eligible for Tysabri. So, in closing, tell me what I have to flash and where to get some attention for this cause!