Maggsbunny

Blogging Bunny-style

I think it’s about time…

with 2 comments

…that I stopped expecting MS to play fair.

It never has and it never will.

I don’t get time off for good behaviour.

And here is a big admission – I finally am willing to accept that it is nothing that I have done that causes my relapses. They just come out of the blue. Sure, I can eat better than I do (can’t we all) but it doesn’t stop the relapses. Being on the trials hasn’t stopped the relapses, just lessened the severity. For which I am grateful.

But this current relapse is a doozi. For the general ‘feeling crappy’ factor and also because it has targeted two of my most important functions – my breathing and my eyesight. This makes it the worst relapse I’ve had since starting on the trials.

I seem to be dodging the flu bullet at least. Maybe. I do have a slight head cold but nothing to write home about.

I actually do feel a bit better today. Not half as spaced out from the medicine, or feeling like I’m going to pass out every time I stand up.

My breathing is a little better than it was, but the trend seems to be that it is better in the mornings and worse at night. I’ve got a slight tension headache from the eyestrain, too.

Now I’ve got to face up to going back to hospital for another session when I’m just over the worst of the side-effects. I can’t articulate how much I am not in the mood for that!

I’m nervy about this whole breathing thing, though. When I was in hospital on Saturday, they measured my oxygen saturation and it was 90%. Normally it is 100%, or 97% (the worst it ever was). The nurse told me that 90% is borderline. Any lower and you’re a candidate for receiving oxygen!

Still, I feel okay enough to go and visit my niece for her birthday today, so I’m hardly at death’s door, lol.

It’s just driving me crazy that I have worked so hard to make some positive progress and it is being whipped away in a matter of days. Unfair, MS.

Written by Maggie

August 7, 2008 at 11:47 am

Posted in Uncategorized

2 Responses

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  1. MS is unfair. Very very very much so. I hope the hospital visit goes okay

    supermom

    August 7, 2008 at 12:19 pm

  2. Keep up the fight!! Feel better soon.

    Courtney

    August 7, 2008 at 3:50 pm


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