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Tomorrow M and I are going on a bit of a roadtrip. Not the pleasant kind, mind you.

Tomorrow is the last appointment for the Fingolimod trials I have been on. Yup, my two years are up, can you believe. And what a long way I have come.

We have to hang around in Jozie on Monday night, however, because on Tuesday morning I start the extention phase of the trials. The open-label one. I have to spend six hours in hospital being observed.

We will probably sleep over at my younger sister’s place which will be nice as I’ll get to see her and my gorgeous niece.

Really not looking forward to tomorrow, though. I have four specialist appointments, each one worse than the last, culminating in a MRI scan (complete with contrast dye) and the eye exam. Never get tired of having my eyes dilated and prodded. Not!

I’m trying not to be negative about it, as I know how incredibly lucky I have been to be on these trials in the first place, and now having the opportunity to go on the extention phase. So I’ll just shut up now 😉

Written by Maggie

February 1, 2009 at 10:59 pm

Posted in Uncategorized

6 Responses

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  1. Will be thinking of you all the way Maggs – All is gonna be good!!! Take Care and have a safe journey 🙂


    February 3, 2009 at 12:58 am

  2. Girl I’m sure it will be okay.. like you said you came so far. I am taking good care of your baby.. ( Beary ) she is so cute. Just went to see her again now.. ( 3rd time today ) 1.30 pm ) hahaha

    Drive back safely please



    Marié Archer

    February 3, 2009 at 2:15 pm

  3. Best Wishes Maggie.


    February 3, 2009 at 8:42 pm

  4. Congrats on getting to the extention phase of the trial! Do you have a good guess as to what dose (if any!) you’ve been on these past two years? I can’t wait to find out for real to see if I’ve guessed right on my trial!


    February 3, 2009 at 9:10 pm

  5. So how did it all go?? Congrats on completing your trial!!!

    Can’t wait to hear your update. 🙂



    February 5, 2009 at 1:45 pm

  6. Good luck, best wishes, My thoughts will be with you.
    Found the following news just a few seconds ago:


    February 5, 2009 at 11:21 pm

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